Sallie Milam, JD, CIPP/US/G, is a deputy director of the Network’s Mid-States Region Office. Sallie has practiced law for over 25 years primarily in the health, HIPAA and general privacy areas. She is a Certified Information Privacy Professional, with U.S. and government privacy certifications. She has extensive experience in working with state agencies on data related issues. From 2003 to 2018, Sallie served as West Virginia’s chief privacy officer and led the executive branch’s privacy program. Previously, Sallie facilitated data sharing through her service as the West Virginia Health Care Authority’s privacy officer and as HIPAA senior legal counsel, where she led HIPAA privacy implementation across the West Virginia executive branch. Additionally, she was the first executive director of the West Virginia Health Information Network, which is West Virginia’s statewide health information exchange, and was West Virginia’s project director for its Nationwide Health Information Network contract.

Articles & Resources

Data Governance: Ensuring Trust and Managing Risks

WebinarsHealth Information and Data Sharing

January 14, 2020
by Sallie Milam and Steven Gravely

When health care providers, public health and others create, use and share data, governance is required to ensure that trust is maintained and interoperability risks are appropriately managed. This webinar will highlight how governance is achieved by providing coordination and oversight through a policy framework, a decision-making body and trust agreement.

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Summary of State Laws that Facilitate Data Sharing Among State Agencies

SummaryHealth Information and Data SharingMid-States Region

October 22, 2019
by Denise Chrysler and Sallie Milam

Data are essential for public health surveillance, epidemiological investigation, research, program development, implementation and evaluation. Sharing data across government agencies assists in addressing social determinants of health, environmental needs and risk factors; in better aligning services that support individuals; and in enhanced public health surveillance. Further, better information for health and human services agencies generally produces better care.

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Data Sharing to Improve Community Health: Highlights from the 2019 Public Health Law Summit

Law & Policy InsightsHealth Information and Data Sharing

October 8, 2019
by Jennifer Bernstein and Sallie Milam

The Network recently held a two-day Summit focused on strategies to collect, use, share and protect multi-sector data to improve the health of communities. In this Q & A, Sallie Milam, J.D. and Jennifer Bernstein, J.D. deputy directors at the Network’s Mid-States Region Office, which organized the Summit, discuss why the Summit was so important to those working with health data and public health.

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TEFCA Enables Nationwide Exchange of Electronic Health Information for Public Health

Law & Policy InsightsHealth Information and Data Sharing

September 25, 2019
by Sallie Milam

The Trusted Exchange Framework and Common Agreement (TEFCA) enables health information to be shared nationwide by public health, government agencies, individuals, providers, payers and technology developers. TEFCA promises to position public health to work faster and more efficiently towards health equity by enabling better reporting, cross-jurisdictional information exchange, surveillance, tracking and outbreak investigation.

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Data Sharing Strategies to Advance Health Equity

WebinarsHealth Information and Data SharingDe-identification of Data

May 16, 2019
by Jennifer Bernstein and Sallie Milam

Join us for a discussion of how a modern information infrastructure, built with health and non-health data that are locally relevant, is critical to both public health and its community partners to increase health equity. We will examine how public health may more widely use de-identification to make more timely, reliable, sub-county and actionable data available. This webinar will provide an in-depth look at the benefits of utilizing de-identified data and the mechanics of disclosing it.

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Privacy Officers and Data Sharing: A Q&A with Network Attorney Sallie Milam

Law & Policy Insights

April 11, 2019
by Sallie Milam

Building healthy communities requires access to relevant data from multiple sectors, including public health, health care, schools, human services, housing and law enforcement. Because they can be complex to navigate, federal and state laws governing data collection, use, and sharing can act as barriers to data use. With specialized knowledge in the use of data, privacy officers can help reduce this complexity, making data more accessible to the agencies they serve.

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