Overview
This toolkit provides public health practitioners and others with the tools and resources to better understand de-identification for improved collection and use activities, and to more freely, safely and legally disclose de-identified data needed for the community’s information infrastructure.
As de-identification is a delicate process involving a variety of statistical and scientific methods to balance data utility against the risk of breaching an individual’s privacy, leadership should both govern and manage data disclosure, and ensure that it is performed by appropriately trained and experienced individuals.

Project Tycho
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Robert Wood Johnson Foundation Culture of Health Sentinel Community Snapshots: Mobile, Alabama
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The Memphis Community Health Record Project
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De-identification is an Important Tool to Make Data Available to Communities
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Checklist of Review Criteria for Public Health Agencies to Evaluate Proposed Collection, Access and Sharing of De-identified Data
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Checklist of Factual Information Needed for Public Health Agencies to Address Proposed Data Collection, Access and Sharing
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De-Identification: As Described by Federal Statutes
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Guidance from the Courts
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HIPAA Privacy Rule’s Safe Harbor De-Identification Method
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HIPAA Expert Determination De-Identification Method
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Statistical or Scientific De-Identification Fact Sheet
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De-Identification of Health Data: Law and Practice
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