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Resource Collection De-identification of Data

De-Identification Toolkit

February 11, 2019

by Denise Chrysler and Sallie Milam

Overview

This toolkit provides public health practitioners and others with the tools and resources to better understand de-identification for improved collection and use activities, and to more freely, safely and legally disclose de-identified data needed for the community’s information infrastructure.

As de-identification is a delicate process involving a variety of statistical and scientific methods to balance data utility against the risk of breaching an individual’s privacy, leadership should both govern and manage data disclosure, and ensure that it is performed by appropriately trained and experienced individuals.

Project Tycho

Robert Wood Johnson Foundation Culture of Health Sentinel Community Snapshots: Mobile, Alabama

The Memphis Community Health Record Project

De-identification is an Important Tool to Make Data Available to Communities

Checklist of Review Criteria for Public Health Agencies to Evaluate Proposed Collection, Access and Sharing of De-identified Data

Checklist of Factual Information Needed for Public Health Agencies to Address Proposed Data Collection, Access and Sharing

De-Identification: As Described by Federal Statutes

Guidance from the Courts

HIPAA Privacy Rule’s Safe Harbor De-Identification Method

HIPAA Expert Determination De-Identification Method

Statistical or Scientific De-Identification Fact Sheet

De-Identification of Health Data: Law and Practice