Data Sharing Agreements
January 18, 2020
A public health professional contacted the Network to ask if the Network could provide them with data use agreement templates for use by local public health authorities?
Data sharing is an integral component of all public health authorities’ provision of the ten essential public health services: monitor health; diagnose and investigate; inform, educate, empower; mobilize community partnerships; develop policies; enforce laws to protect health and ensure safety; link to/provide care; assure competent workforce; evaluate; and research. Further, sharing and analyzing cross-sector data is essential to gaining both individual and community-centric perspectives. Data sharing is of such paramount importance to public health that Public Health 3.0 prioritizes data sharing at federal, state and local levels with the goal of a learning health system that uses evidence to improve the quality and value of health care that includes public health by 2024.
Public health policy and law typically require that a data sharing agreement be signed by both the data custodian and the data requestor before data is shared. A data sharing agreement sets out the legal authority that supports the data sharing, establishes and documents the terms of sharing, and delineates the monitoring and accountability. Background information on data sharing agreements may be found here.
When a public health practitioner first engages their attorney on a project to help with a data sharing agreement, it would be helpful to be prepared with factual information that will aid the attorney in determining the health department’s needs as well as identifying the areas of law that may be implicated by the proposed data sharing initiative. The Network for Public Health Law suggests completing the tool Checklist of Information Needed to Address Proposed Data Collection, Access and Sharing and providing it to the public health attorney. This tool may also be useful in determining the data sharing goals for the project and identifying potential data sharing partners.
The following are examples of data sharing agreements utilized by public health authorities:
- Michigan Data Use and Non-Disclosure Agreement Concerning Protected Health Information or Other Confidential Information
- West Virginia Executive Branch Data Use Agreement (link automatically downloads Word document)
- Medicaid Innovation Accelerator Program State Data Use Agreement Example (Louisiana)
- Sample Inter-Agency Data-Sharing Agreement
- The New York City Department of Health and Mental Hygiene Data Use Agreement
Network attorneys are available to answer questions on this and other public health topics at no cost to you, and can assist you in using law to advance your public health initiatives. Contact a Network Attorney in your area for more information. The legal information and assistance provided in this document does not constitute legal advice or legal representation. For legal advice, readers should consult a lawyer in their state.