The Scope of Newborn Screening Laws Across the Country

This color-coded map demonstrates the extent to which the state statutes and/or regulations of each state address certain core provisions related to the retention and use of residual newborn screening dried blood samples (DBS) and related information as determined by our research team.

Click on a state for a state profile, which identifies the extent that the state’s statutes and/or regulations address core provisions. Each state profile includes citations and links to the state’s newborn screening laws and the state’s newborn screening program’s website. All links are to free publicly accessible sources. Links were last accessed in May 2015. In the event that a link becomes obsolete or broken, citations to state laws include titles, chapters, parts, etc., as applicable, to assist the user in locating the law through the main page for a state’s public online collection of laws or other source. 

Addresses all core provisions

Addresses at least some core provisions

Addresses some aspects of retention and use of DBS and related information but DOES NOT address core provisions

DOES NOT address the retention or use of DBS related information


View a summary that shows the extent to which state statutes and/or regulations for all states that address core provisions related to the retention and use of residual newborn screening dried blood samples (DBS) and related information.

 

Core provisions related to the retention and use of residual newborn screening dried blood samples (DBS) and related information:

The list of core provisions is intended to capture the extent to which each state has addressed key issues related to the retention and/or use of DBS and information derived from them. This list is not intended to represent a comprehensive listing of state laws related to these issues. The analysis contained in this website is based upon subjective interpretation of state statutes and regulations by our research team and may not reflect how the laws may be interpreted by a court of competent jurisdiction or the legislative intent of the law. Rather, this analysis is intended to provide information to state policy-makers and other stakeholders as they consider these issues.

  • Retention of DBS authorized
  • Retention of information related to DBS (including nbs test results) authorized
  • Purposes for which DBS may be used specified
  • Purposes for which information related to DBS may be used specified
  • Parents informed of retention and/or use of DBS
  • Parents informed of retention and/or use of information related to DBS
  • Parental consent required for some uses of DBS and/or retention of DBS
  • Opt-out permitted of DBS retention and/or use
  • Parental consent required for some uses of information related to DBS and/or retention of the information
  • Opt-out permitted of retention or use of information related to DBS